Solutions for Patient Advocacy Groups

Products and solutions

Gain end-to-end connectivity while ensuring compliance

Utilize privacy-preserving record linkage to conduct data overlaps. Ensure regulatory compliance of new datasets through expert determinations.

Datavant Connect

Develop a holistic view of your patients

Enrich patient-donated data with real-world data in a privacy-preserving manner. Create a 360 longitudinal view, inform research, and advance therapy development.

Increase the utility of your patient data by overlaying mortality and SDOH data

Solve for missing clinical endpoints and develop insights into patient outcomes

Integrate lab, genomic, and sensor data for accelerated treatment research

Learn more

Doctor discussing contents of a tablet with a patient

Health Data Retrieval

Acquire missing clinical data without hindering patients

Increase the utility of your natural history and observational research studies with clinical records.

Access an ecosystem of EMR data providers to identify missing endpoints

Leverage record retrieval services to access the holistic patient view

Maintain control over the access and use of your datasets

Learn more

Team members discussing papers attached to a whiteboard behind them

Real-World Data Ecosystem

Cultivate industry sponsorships for patient initiatives and education

Minimize expenses and reduce time spent on identifying industry engagement opportunities. Access a data connectivity platform with over 600 data partners.

Attract industry sponsors by demonstrating the availability of your data assets

Share patient insights while upholding privacy standards and maintaining data quality

Manage permissions, assess compatibilities, and collaborate securely

Explore the real-world data ecosystem

Explore related resources

In today’s dynamic regulatory environment, healthcare, life science, and research organizations must balance patient privacy with the need for innovation.

Ebook

Ensuring privacy and compliance across health data

12/18/2024

Experts provide overview of key health data sources, such as EHRs, claims, lab, and genomics. Effectively use diverse health data in research and operations.

Ebook

Ecosystem Explorer: Expert Interviews on the Most Common and Useful Data Types in the Datavant Ecosystem

8/5/2024

In today's clinical research landscape, patient registries are transforming how we understand diseases and develop new treatments.

Ebook

How to build a patient registry

1/17/2024

De-identify data while balancing business needs, research objectives and, patient privacy protections. Learn how to protect sensitive information.

Ebook

HIPAA Compliant De-identified Healthcare Data Exchange

11/21/2022

Build a nimble data strategy with Datavant Connect, the platform that helps you balance data utility with data privacy.

Video

Achieve Your Enterprise Data Strategy with Datavant Connect

1/13/2024

This conversation, between John Wig, Chief Medical Officer of Walmart and Tara Grabowsky, Partner and Chief Data Officer of Life Sciences Practice at McKinsey, discussed Walmart’s role in developing clinical trials, building patient registries, and cultivating healthcare access and affordability.

Video

The Power of Prioritizing Health Equity and Access to Disrupt Clinical Trials

10/25/2023

What makes for a useful patient registry? This panel discussed existing shortfalls in patient registries, what patient registries look like in 2023, and what patient registries might look like in an AI-driven future.

Video

Unifying Healthcare Data: Next Generation Patient Registries

10/25/2023

This panel explored challenges in understanding longevity in the US, and if AI could play a role in answering the complex questions involved in a holistic understanding of human longevity.

Video

Who Wants to Live to Be a 100 Years Old: How the Data World Can Help Us Live Longer

10/25/2023

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Kythera Labs leveraged Datavant's advanced identity resolution technology to narrow the number of distinct patients, producing a higher quality dataset.

Case study

Case Study: The power of patient matching in real-world data

1/31/2024

Linking curated claims and registry data from electronic health records sheds light on full disease burden and healthcare utilization

Case study

The Picture Comes into Focus for Patients Suffering with Rare Eye Disease

1/30/2023

A molecular diagnostics company developed a blood test to support treatment selection for patients with advanced non-small cell lung cancer (NSCLC).

Case study

Linking Oncology Diagnostic Labs to Assess their Effectiveness in Supporting Immunotherapy Treatment Selection in Lung Cancer

6/12/2022

Despite high effectiveness of COVID-19 vaccines in the real-world, there have been cases of fully vaccinated patients contracting COVID.

Case study

Validating an Antibody Test to Predict Infection Rates in COVID-19

6/12/2022

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Datavant's integrated tokenization capabilities make it simpler and easier for our customers to tokenize and link data directly on Snowflake Data Cloud.

Product overview

Unlocking Real World Data in Healthcare With Datavant and Snowflake

4/25/2024

Assess is a feasibility reporting toolkit that visualizes metadata and overlap. Evaluate potential data partners with Assess.

Product overview

Evaluate potential data partners with Assess

1/31/2024

Datavant’s tokenization and privacy preserving linkages is fully integrated on Databricks enabling new ways to analyze data in healthcare and life sciences.

Product overview

Enabling the Future of Privacy Forward Data Connectivity with Datavant and Databricks

1/17/2024

Match uses machine learning models trained on comprehensive consumer and EHR datasets to deliver the highest precision rates in the industry.

Product overview

Accurately resolve identity with Match

1/16/2024

In today’s healthcare data landscape, unstructured text represents both a tremendous opportunity and a significant challenge.

White paper

Navigating Privacy in Unstructured Text: Advanced AI Solutions for Compliance and Data Insight

12/18/2024

In today’s data-driven healthcare environment, ensuring patient privacy while maintaining data utility is essential.

White paper

Understanding Expert Determination with Datavant

12/18/2024

In today’s dynamic regulatory environment, healthcare, life science, and research organizations must balance patient privacy with the need for innovation.

White paper

Ensuring privacy and compliance across health data

12/18/2024

Datavant partners with hundreds of entities to benefit patient outcomes. Learn how a robust and growing real-world data ecosystem is emerging in Europe.

White paper

Fixing the Global Health Data Supply Chain

3/21/2024

Discover how AWS and Datavant are revolutionizing real-world data (RWD) access with a cloud-first, privacy-first approach—enabling faster research, better security, and smarter healthcare innovation.

Blog

The Next Generation of Data Connectivity for Healthcare

March 4, 2025

Using Datavant Connect tokenization engine on Snowflake accelerates data processing while protecting patient privacy, and provides additional benefits.

Blog

Datavant Connect on Snowflake Marketplace accelerates tokenization and transformation

July 15, 2024

Real-world data processors are a growing and significant part of the European health data ecosystem. Learn about the fragmentation of European health data.

Blog

The Fragmentation of European Health Data

June 10, 2024

Training AI models on aggregated, de-identified rare disease data, researchers can glean critical insights that manual scouring of data cannot detect.

Blog

How AI and Real-World Data Can Improve the Lives of Patients With Rare Diseases

April 22, 2024

Webinar

Collaborating for Impact: Real-World Use Cases from Provider-Industry Partnerships

6/5/2025

June 5, 2025

A webinar showcasing how U.S. health systems use real-world data and strategic partnerships to transform care, accelerate research, and improve operational performance.

Webinar

From Data to Insights: Harnessing Cloud-First Data Strategies

7/25/2024

July 25, 2024

Maximize your investment in the cloud, reduce data movement, and generate patient insights faster by leveraging Datavant on Snowflake. Watch the webinar.

Webinar

Connecting Health Data in the Cloud

6/6/2024

June 6, 2024

Join us to learn how the Datavant Connect platform integrates with leading cloud services like Databricks, Snowflake, and AWS. Amplify your data capabilities.

Webinar

Advancing Real-World Data Connectivity in Europe

3/27/2024

March 27, 2024

Join this webinar to hear from data sources, analytics companies, and researchers on compliant and privacy-aware data linkage in Europe.

Significant diagnostic delays are common in primary ciliary dyskinesia (PCD), a rare disease that is significantly underdiagnosed. Scalable screening methods could improve early identification and health outcomes.

Research

Feasibility of Machine Learning Analysis for the Identification of Patients with Possible Primary Ciliary Dyskinesia

10/29/2025

Linking claims data to EHRs for metastatic breast cancer patients improves diagnosis coverage and adverse event detection but reduces sample size and underrepresents patients ≥65 years. Age-stratified analyses are recommended for linked data.

Research

Quantification of Information Gained by Linking Claims Data to an Electronic Health Record Cohort of Patients With Metastatic Breast Cancer

9/25/2025

This retrospective study analyzes people with type 1 diabetes using CGM linked to electronic health records, revealing persistent hypoglycemic events and suboptimal glycemic control over time, underscoring the need for new treatment strategies.

Research

A Retrospective Observational Study Characterizing People with Type 1 Diabetes Using CGM in a Linked Electronic Health Record—Continuous Glucose Monitoring Dataset

6/1/2025

Apalutamide leads to faster, deeper PSA90 response vs enzalutamide in real-world patients with de novo metastatic castration-sensitive prostate cancer.

Research

Real-world comparison of deep prostate-specific antigen response in patients with metastatic castration-sensitive prostate cancer treated with apalutamide or enzalutamide

6/1/2025

Join the 10,000+ anticipated attendees (including 2,500+ CEOs), 300+ speakers, and 800+ sponsors, all convening at HLTH to be part of healthcare's preeminent all-inclusive event experience.

HLTH Las Vegas 2024