Solutions for Patient Advocacy Groups

Products and solutions

Gain end-to-end connectivity while ensuring compliance

Utilize privacy-preserving record linkage to conduct data overlaps. Ensure regulatory compliance of new datasets through expert determinations.

Datavant Connect

Develop a holistic view of your patients

Enrich patient-donated data with real-world data in a privacy-preserving manner. Create a 360 longitudinal view, inform research, and advance therapy development.

Increase the utility of your patient data by overlaying mortality and SDOH data

Solve for missing clinical endpoints and develop insights into patient outcomes

Integrate lab, genomic, and sensor data for accelerated treatment research

Learn more

Doctor discussing contents of a tablet with a patient

Health Data Retrieval

Acquire missing clinical data without hindering patients

Increase the utility of your natural history and observational research studies with clinical records.

Access an ecosystem of EMR data providers to identify missing endpoints

Leverage record retrieval services to access the holistic patient view

Maintain control over the access and use of your datasets

Learn more

Team members discussing papers attached to a whiteboard behind them

Real-World Data Ecosystem

Cultivate industry sponsorships for patient initiatives and education

Minimize expenses and reduce time spent on identifying industry engagement opportunities. Access a data connectivity platform with over 600 data partners.

Attract industry sponsors by demonstrating the availability of your data assets

Share patient insights while upholding privacy standards and maintaining data quality

Manage permissions, assess compatibilities, and collaborate securely

Explore the real-world data ecosystem

Explore related resources

Experts provide overview of key health data sources, such as EHRs, claims, lab, and genomics. Effectively use diverse health data in research and operations.

Ebook

Ecosystem Explorer: Expert Interviews on the Most Common and Useful Data Types in the Datavant Ecosystem

8/5/2024

In today's clinical research landscape, patient registries are transforming how we understand diseases and develop new treatments.

Ebook

How to build a patient registry

1/17/2024

De-identify data while balancing business needs, research objectives and, patient privacy protections. Learn how to protect sensitive information.

Ebook

HIPAA Compliant De-identified Healthcare Data Exchange

11/21/2022

Build a nimble data strategy with Datavant Connect, the platform that helps you balance data utility with data privacy.

Video

Achieve Your Enterprise Data Strategy with Datavant Connect

1/13/2024

AI has the potential to touch all parts of the healthcare industry. While still in its infancy, this panel imagined scenarios for how and where to deploy AI in order to maximize its potential for improving patient outcomes.

Video

AI: Opportunities, Risks and Regulations in A New Era

10/25/2023

What lessons have we held onto from the COVID-19 pandemic? This panel explored how the public-private partnerships that were established during the pandemic affect our current data readiness, as well as how we can better navigate complex regulatory jurisdictions to maintain critical data flow in times of crisis.

Video

A Roadmap to Resilience: Are We Ready for the Next Pandemic Threat?

10/25/2023

Large fit-for-purpose clinical trials remain prohibitively expensive and challenging to organize. This panel discussed building patient trust and finding alternative routes to organizing large clinical trials.

Video

Curbing the Cost Crisis: The Digital Prescription for Affordable Clinical Trials

10/25/2023

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Kythera Labs leveraged Datavant's advanced identity resolution technology to narrow the number of distinct patients, producing a higher quality dataset.

Case study

Case Study: The power of patient matching in real-world data

1/31/2024

Linking curated claims and registry data from electronic health records sheds light on full disease burden and healthcare utilization

Case study

The Picture Comes into Focus for Patients Suffering with Rare Eye Disease

1/30/2023

Despite high effectiveness of COVID-19 vaccines in the real-world, there have been cases of fully vaccinated patients contracting COVID.

Case study

Validating an Antibody Test to Predict Infection Rates in COVID-19

6/12/2022

A molecular diagnostics company developed a blood test to support treatment selection for patients with advanced non-small cell lung cancer (NSCLC).

Case study

Linking Oncology Diagnostic Labs to Assess their Effectiveness in Supporting Immunotherapy Treatment Selection in Lung Cancer

6/12/2022

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Datavant's integrated tokenization capabilities make it simpler and easier for our customers to tokenize and link data directly on Snowflake Data Cloud.

Product overview

Unlocking Real World Data in Healthcare With Datavant and Snowflake

4/25/2024

Assess is a feasibility reporting toolkit that visualizes metadata and overlap. Evaluate potential data partners with Assess.

Product overview

Evaluate potential data partners with Assess

1/31/2024

Datavant’s tokenization and privacy preserving linkages is fully integrated on Databricks enabling new ways to analyze data in healthcare and life sciences.

Product overview

Enabling the Future of Privacy Forward Data Connectivity with Datavant and Databricks

1/17/2024

Match uses machine learning models trained on comprehensive consumer and EHR datasets to deliver the highest precision rates in the industry.

Product overview

Accurately resolve identity with Match

1/16/2024

In today’s dynamic regulatory environment, healthcare, life science, and research organizations must balance patient privacy with the need for innovation.

White paper

Ensuring privacy and compliance across health data

12/18/2024

In today’s data-driven healthcare environment, ensuring patient privacy while maintaining data utility is essential.

White paper

Understanding Expert Determination with Datavant

12/18/2024

In today’s healthcare data landscape, unstructured text represents both a tremendous opportunity and a significant challenge.

White paper

Navigating Privacy in Unstructured Text: Advanced AI Solutions for Compliance and Data Insight

12/18/2024

Datavant partners with hundreds of entities to benefit patient outcomes. Learn how a robust and growing real-world data ecosystem is emerging in Europe.

White paper

Fixing the Global Health Data Supply Chain

3/21/2024

Using Datavant Connect tokenization engine on Snowflake accelerates data processing while protecting patient privacy, and provides additional benefits.

Blog

Datavant Connect on Snowflake Marketplace accelerates tokenization and transformation

July 15, 2024

Real-world data processors are a growing and significant part of the European health data ecosystem. Learn about the fragmentation of European health data.

Blog

The Fragmentation of European Health Data

June 10, 2024

Training AI models on aggregated, de-identified rare disease data, researchers can glean critical insights that manual scouring of data cannot detect.

Blog

How AI and Real-World Data Can Improve the Lives of Patients With Rare Diseases

April 22, 2024

Genomic data results from an individual's DNA sequence, including information about identified genes, variants, and their specific locations within the genome.

Blog

What is Genomic Data and How to Access It?

April 4, 2024

Webinar

Navigating Real-World Data in Germany and Beyond

9/12/2023

September 12, 2023

Understand the international health data landscape, and explore emerging trends in real-world data sources and applications.

Webinar

Specialty Pharmacy Data Aggregation: Opportunities & Challenges

11/10/2020

November 10, 2020

In this webinar we will provide an overview of specialty pharmacy data, tracing the patient journey to understand the data being generated and how it flows.etc…..

Webinar

Using Fit-for-Purpose Real-World Data to Enhance Our Understanding of COVID-19

7/30/2020

July 30, 2020

In this webinar we will provide an overview of how linking real-world data across institutions is necessary to accelerate COVID-19 research,etc….

Webinar

Using Fit-for-Purpose EHR Data to Understand COVID-19

9/16/2020

September 16, 2020

Get an overview of EHR data and its fit-for-purpose value in understanding treatment decisions and impact on patient outcomes.

Using Datavant's Death Index database, researchers assess COVID-19 mortality trend by time and sex to analyze mortality cases and identify observed differences.

Research

Sex differences in COVID-19 mortality: A large US-based cohort study (2020–2022)

7/9/2024

This study outlines a method for updating age-constrained thresholds using upcoming 2020 census data and provides recommendations based on the 2010 census.

Research

Best Practices in Evolving Privacy Frameworks for Patient Age Data: Census Data Study

3/25/2024

Research driven by real-world clinical data is increasingly vital to enabling learning health systems, but integrating such data from across disparate health systems is challenging.

Research

Privacy-preserving record linkage across disparate institutions and datasets to enable a learning health system: The national COVID cohort collaborative (N3C) experience

1/11/2024

Substance misuse is a complex and heterogeneous set of conditions associated with high mortality and regional/demographic variations. Existing data systems are siloed and have been ineffective in curtailing the substance misuse epidemic.

Research

Creation of a data commons for substance misuse related health research through privacy-preserving patient record linkage between hospitals and state agencies

12/4/2023

Join the 10,000+ anticipated attendees (including 2,500+ CEOs), 300+ speakers, and 800+ sponsors, all convening at HLTH to be part of healthcare's preeminent all-inclusive event experience.

HLTH Las Vegas 2024