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Webinar
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The Value of Linked Datasets in Rare Genetic Disease Research

Date
Time
March 30, 2021
1:00 pm
EST
Watch Now
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Meet the speakers

University of Utah
Jacob Kean
Associate Professor in Health System Innovation
Cerebral Palsy Research Network
Paul Gross
Chairman and Founder
Phoenix Children's Hospital
Michael Kruer
Pediatric Neurologist
Datavant
Claire Manneh
Provider Partnerships & Innovations

About the webinar

In this discussion, Datavant and Dr. Michael Kruer of Phoenix Children’s Hospital, Dr. Jacob Kean of the University of Utah, and Paul Gross, founder of the CP Research Network will share:

  • An overview of the CP Research Network and how they are transforming CP care utilizing fit-for-purpose clinical registry data
  • CP Research Network’s vision for enabling research and quality data embedded in the EMR
  • How to unlock the discovery of genetic causes for CP and other rare diseases by linking real-world datasets
None

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Datavant makes the world’s health data secure, accessible, and usable. Datavant is a data logistics company for healthcare whose products and solutions enable organizations to move and connect data securely.

Through proprietary technology, the world's most robust healthcare network, and value-added services we protect, connect, and deliver the world's health data. Datavant enables more than 60 million healthcare records to move between thousands of organizations, more than 70,000 hospitals and clinics, 70% of the 100 largest health systems, and an ecosystem of 500+ real-world data partners.

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