Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet
The aim of this study was to determine whether a secure, privacy-preserving record linkage (PPRL) methodology can be implemented in a scalable manner for use in a large national clinical research network.
Real-World Matching Performance of Deidentified Record-Linking Tokens
Elmer V Bernstam, Reuben Joseph Applegate, Alvin Yu, Deepa Chaudhari, Tian Liu, Alex Coda, Jonah Leshin Objective: Our objective was to evaluate tokens commonly used by clinical research consortia to aggregate clinical data across institutions.
The Future of Health Data: A 2022 Life Sciences Industry Insights Report
A survey of life sciences leaders reveals some of the key challenges that come with using real-world data (RWD) for innovation, along with their vision and predictions for how RWD can accelerate drug development and improve patient outcomes.