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America’s COVID-19 Data Gap

The United States’ health care system is one of the most technically advanced in the world, yet is struggling to answer even simple questions about COVID-19. Despite millions of data points in the real world, billions of dollars of research money, and trillions of dollars of economic impact, there are a number of basic questions that we still cannot answer:

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The Burden of COVID-19 on Primary Care

There is growing interest in understanding the patient impact of COVID-19 not just during an acute case, but long afterwards. The mounting evidence of longer-term mental and physical effects suggests a need for better understanding of care requirements beyond the emergency room.

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Datavant 2.0: Connecting the World’s Health Data to Improve Patient Outcomes

3.5 years ago, I founded Datavant to connect the world’s health data to improve patient outcomes. Today, we are announcing the combination of Ciox and Datavant – our biggest step forward to become the neutral, trusted, ubiquitous infrastructure powering the exchange of data across healthcare. This post outlines our vision…

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Celebrating the Next Generation of Connected Clinical Trials

Today is Clinical Trials Day, organized by the Association for Clinical Research Professionals. Clinical Trials Day is a day for celebration and recognition of clinical trial professionals and the work they do every day to improve patient lives and bring new treatments to market. New interventions are a source of…

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Datavant Way: The DNA of Our Distinctive Culture

The greatest companies have distinctive cultures — cultures that attract great people and define how an organization works together to pursue a mission and build a huge business. Some of the greatest companies have written down their cultural playbooks: the Netflix Culture deck (from 2009) and the HP Way (from 1980) were cultural manifestos…

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Why the New Interoperability Rules Don’t Yet Mean the Death of the Fax Machine

In a 2018 piece on why American medicine still runs on fax machines, Vox explained why the last decade of US government efforts to automate health data exchange had shown limited results. Earlier this month, new rules from ONC and CMS went into effect focused on making it easier for…

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The Fragmentation of Public Health Data

Special thanks to the following individuals for their help writing this article: Surafeal Asgedom, Michael Stebbins, David Shulkin, Niall Brennan, Tom Carton, Andrew von Eschenbach, and Charlie Rothwell. *** In the US, there are over 2,000 government health data sets at the federal, state, and local levels, including several…

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Why Privacy-Preserving Record Linkage is Having a Moment: Interview with Abel Kho

This past weekend, the Donald A.B. Lindberg Award for Innovation in Informatics presented by the American Medical Informatics Association (AMIA) was awarded to Abel Kho for his pioneering work and research applying privacy-preserving record linkage (PPRL) methods to healthcare. Abel Kho, MD, MS, FACMI Abel is a practicing physician and faculty…

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Further Evidence that COVID-19 Disproportionately Impacts African American, Hispanic, and Low-Income Populations

Over the past several months, studies have indicated that COVID-19 has disproportionately impacted African American and Hispanic populations, as well as socioeconomically disadvantaged groups. A recent Sutter Health study showed that African Americans diagnosed with COVID-19 were 2.7 times more likely to be hospitalized compared to white patients [1]. Using…

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