Datavant supports transparent research that utilizes real-world data in a privacy preserving manner. Below, we highlight research efforts that have used Datavant technology to link real-world data for the benefit of patients and the public good.
Some patients with diabetes are hospitalized repeatedly for diabetic ketoacidosis (DKA), which is typically associated with worse clinical outcomes. The authors analyzed recurrent DKA and fragmentation of care across six institutions in the Chicago area, using Datavant technology to understand when the same patient would have different DKA episodes in different hospitals. The study found that of the 3,615 patients, 21.6% had recurrent DKA; of the 780 recurrent patients, 125 were hospitalized at more than one hospital.
The study discusses the design and implementation of a tool that created a secure, privacy-preserving linkage of electronic health record (EHR) data across multiple sites in Chicago. There are a number of uses for this technology, including in clinical research and understanding the fragmentation of care. The software documented in the study was able to link data across the six institutions, resulting in five million unique patient records while de-duplicating seven million records. Today, the software is part of the Datavant offering.